The American Liver Foundation and everyone concerned with Hepatitis C visiting this website would love it if you would share your story too! Simply email your story and picture (if you like) to: firstname.lastname@example.org. We would be happy to add it to the Patient Stories page of this website so others won’t feel like this is something happening only to them. Thank you.
I have been fighting the Hepatitis C virus for over 30 years, having been infected through blood transfusions during open heart surgery when I was 8 years old. I was diagnosed in 2003 and was told I was stage 4 … unfortunately, that wasn’t the worst of it.
The worst news was when they told me my then three- week old son was also infected [as 5 out of every 100 babies contract the virus in utero or during birth]. This part of our story has ended in a miracle as my beautiful son was able to fight off the infection on his own with no treatment! He is negative with no signs of ever having the virus! The doctors had told me a very small percentage of children are able to do this and we thank God for this wonderful miracle of life and health.
As for me, I was treated on a clinical trial for six months and the end result was that I was a non-responder. I then immediately switched to the strongest medicine available (daily infergen and ribavirin) and while I was on the treatment I cleared the virus. Unfortunately after a year and a half of treatment I relapsed. Even though the doctors were not hopeful, I decided last winter to give treatment one more try. Unfortunately I did not respond to the treatment and had to stop, making me an official non responder.
They are hoping for new oral treatments to be available in a few years, but some of us do not have a few years to wait.